(I've got to say it: This is not medical advice. You can only get that from your doctor. If you have any questions about your health, please see your doctor. Thank you!)

Life-changing... That sums up gluten free living for me.

Decades of unexplained health scares, culminating in a near-fatal event, left me terrified and frustrated. Then, as hard as it is for me still to believe after just 3 days of living gluten free, I found hope.

That was nearly four years ago. After feeling so good for so long, I find myself sometimes forgetting how I felt prior to eliminating gluten from my diet.

Recently I've had a few reminders. I’ve experienced some of the “old feelings”... Aches, abdominal pain and bloating, mental fog. Somehow, from somewhere, gluten has gotten in.

I can tell it’s a very small amount. I’m working on determining the source. Perhaps some of the bulk bins I've been purchasing grains and seeds from used to have gluten-containing items in them. There are some near-by. I’ll keep you posted on my ongoing “gluten investigation”.

With this on my mind, I thought it'd be a good time to chat about going gluten free, Celiac Disease (CD) and Gluten Sensitivity (GS).

Hardly a day passes where I’m not asked to explain “what is gluten?” or “how do you know if you have Celiac Disease?”

You might get the same questions. Or these might be
your questions... They might still be your questions if "gluten free" is new to you.

Perhaps this will help with some understanding... keeping it simple.

First, What is Gluten?

Gluten is the protein portion of certain grains such as wheat (including spelt and kamut), barley, rye, triticale, and malts. While oats do not contain gluten, they are often processed in the same facilities that handle gluten-containing grains; therefore, oats that are not certified gluten-free may contain gluten.

In baking, gluten provides the elasticity needed to lend structure and texture to items such as breads and cakes and to yield a tender finished product.

You might be thinking, "How, without gluten, can you make bread and, if you can, how could it possibly be any good?!"

The answer lies in using a mix of alternative flours (rice, tapioca, quinoa, millet, etc.). Bakers (including me!) are experimenting with new combinations all of the time. It is absolutely possible for us have our (gluten free) cake, and enjoy it, too!

At first, I thought of "going gluten free" as having to give up something in baking. I quickly got over that, accepted the challenge and opened my mind. I discovered exciting new ingredients and techniques that are, in many ways, far more streamlined and easier than traditional gluten-filled baking.

Just check out my Naked Banana Coffee Cake...
 
Picture
Picture
 
You’ll never miss the gluten that's
not in these!
 
Why Go Gluten Free

 
Going gluten free for some may be a personal choice.

For most (and for me!), removing gluten from the diet is a necessity. They have CD or GS and must go gluten free to avoid having potentially quite serious negative health reactions.

What are Celiac Disease and Gluten Sensitivity?

CD is a genetic disorder of the immune system affecting the lining of the small intestine. When people with CD consume gluten, the body responds by attacking the villi of the small intestine. This leads to poor nutrient absorption and other health issues.

While there are over 300 symptoms associated with CD, here are some of the more common ones: Gastrointestinal upset (diarrhea, constipation, bloating, gas), fatigue, headache, joint pain, depression, inability to concentrate, irritability, mouth sores, tingling or numbness in extremities, and skin rash or irritation. On the other hand, some people with CD have no symptoms at all.

Those with GS (you may also hear it called "gluten intolerance") may not technically have CD. Ingesting gluten does not produce the antibodies in the bloodstream that indicate CD or lead to damage of the small intestine. Nevertheless, they do experience many of the same symptoms as those with CD. Those with GS must adhere to a gluten free diet to avoid the problems gluten causes them.

A Bit on Diagnosing Celiac Disease

Diagnosing Celiac Disease is a bit of a puzzle... It's not obvious like a broken arm.

Instead, CD shares some symptoms with many other common illnesses. Common misdiagnoses are: Irritable Bowel Disorder (including Crohn's Disease and Ulcerative Colitis), chronic fatigue syndrome, fibromyalgia, and even depression.

According to the
National Foundation for Celiac Awareness, blood tests for certain antibodies are the first step to diagnosing CD. These antibodies are produced as a response to gluten in someone that may have CD.

If doctors discover the antibodies, they order an endoscopy of the small intestine. This is where a thin, flexible tube is inserted into the small intestine via the mouth. This tube has a camera on it and can take a tissue sample for a biopsy. Depending on the results of the endoscopy, the patient may be diagnosed with CD.

This is the Simple Version...

There is certainly much more to Celiac Disease, Gluten Sensitivity, and the health challenges they pose.

Think of this just as a primer... something simple and in everyday English. My hope is it will help the next time you get any questions about gluten or be wondering what it is yourself.

Again, this is not medical advice. You can only get that from your doctor.
If you have any questions about your health, please see your doctor. Thank you!

Finally, I’d welcome your thoughts and would truly appreciate it if you would join in the conversation. Every bit of input is a great help for us all. Take care out there...

xo,
Gigi

P.S. Right now, I’m in sunny Orlando, FL where I'll be “tweeting” from the 37th Annual Gluten Intolerance Group Education Conference. Just follow @glutenfreegigi to get the updates on what we're learning and who we're meeting!

I'm staying in the lovely Gaylord Palms hotel where we'll also be doing this week’s Sipping Sunday. I can’t wait to find out what they have in store for us!

 


Comments

Sara
07/01/2011 10:34

Gigi,

This is extremely good information and simple too.

I may finally be able to explain this to someone intelligently... Thank you!

Sara

Reply
Jill
07/01/2011 12:52

Great post, Gigi! I'd love to hear how you and others answer these kinds of questions when meeting friends/family in restaurants where they is NOTHING on the menu for you and the staff is not very knowledgeable about allergens. I am not only gluten-free but dairy-free and soy-free as well for a few months. I've just avoided restaurants altogether until now, but it seems everyone wants to get together in them. When I eat nothing, I think friends are uncomfortable, but is it OK to take a little something I can eat in a restaurant? I don't even like to order drinks other than water, and I feel uncomfortable not ordering anything. My hubby and daughter eat free with me at home but succumb to the pressure of feeling "normal" when we are out. Would love some creative solutions! Thanks!

Reply
07/04/2011 12:38

Hi, Jill! Hmm... that's a tough one regarding "nothing" on the menu and "no knowledge" of allergens, etc.

As you know, I am also gluten free, dairy free, soy free, and nut free.

It can be a challenge, but is entirely do-able! That's what I want our site to be all about - making it easier for all of us to live happily with our food allergies and to ENJOY ourselves and be healthy! :)

To answer your questions:
1. It is ENTIRELY OK to take whatever you need to in regard to food at friends/family in terms of food that is "safe" for you to eat. They love you and will understand with kind and gentle education. Most times, people are interested to learn more about food allergies, but because the topic can be very involved and complex, it intimidates some folks. YOU can play a huge role in helping them understand. :)

2. In terms of restos, that is variable, depending on where you are/the restos you visit.

I am always careful, but have visited several (especially in Florida while attending the Gluten Intolerance Group Conference last week) that are quite capable of serving gluten free diners.

I'll be sharing lots of that information for everyone to use in the very near future, so stay tuned for that!

Most restos are understanding when diners say, "I have a food allergy and need to bring a little something in with me, is that ok with you?"

That said, you could also try calling ahead to find out if the restaurant you want to visit is willing/able to accommodate your dietary needs.

Don't by shy about this... most are open to hearing what their customers want!

Some tips (and there are many more I'll share in a post soon!):

Ask for salads to be made without croutons, salad "toppings", and anything else that you cannot identify as 100% gluten free.

Be careful of dressings. I use oil & vinegar, and put them on myself.

If pre-tossed, always ask that your salad be made in a separate bowl, and don't forget to ask if the kitchen has a dedicated area for gluten free food prep.

If they do not, many restos will happily use a piece of foil on their grill or cook top to prepare things like burgers or chicken. But remember, you have to ask ALL the questions. Do not assume the staff is informed!

Regarding feeling "normal"... well, here, that is gluten free, dairy free, soy free, and nut free... but what's "normal"?

We are all unique and wonderful, each with our own set of needs. Perhaps we are each our own "normal".

I'm so happy you brought this topic to the site comments. Thank you!

Let's all join in the convo and embrace our own liberated diet and support one another along the way! ;)

Thank you so much for your support here, Jill!!! You are truly dear to me!

xoxo,
Gigi

Reply
07/04/2011 13:03

Hi, Sara.

Thanks so much for stopping by, and also for brining up the simplicity of the post.

It is my goal to keep gluten free living simple and easy for all of us to understand and to carry out!

Please do pass it along to anyone you feel it may benefit! :)

Thanks so much for stopping by!

xo,
Gigi

Reply
12/04/2011 23:34

Hi Gigi,
Great post! I was misdiagnosed for years before learning that gluten was the cause of all my ills. My full story can be read on http://kaellasglutenfreeguide.com. The unfortunate thing about the blood test is you have to be eating gluten for two weeks for the test to be accurate. My friend, who for years Ive suspected was gluten intolerant, was told after a scoping that she most likely had CD. Then the doctors told her she had to keep eating it for the test! Who wants to do that? I went the trial & error route.

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